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Privacy and data protection in Digital Health [Keynote]   This channel is reserved. Register to watch the videos.

Privacy and data protection in Digital Health [Keynote]

Data about healthcare and biometric data are considered 'sensitive data' under the General Data Protection Regulation of the European Union, which will come into full effect in May 2018. In principle, processing those data is prohibited, though there are exceptions. It is far from sure that smart healthcare applications will be covered by those exceptions. This will have an impact on digital health start-ups and hamper innovation in practice. In addition, the application of the GDPR is determined by the scope of 'personal data', which may include anonymous, aggregated and statistical data - this may have a big impact on the possibility of doing scientific medical research on patient data and biosamples. Although the privacy and data protection framework has not always been adequately enforced, the GDPR will change this - inter alia, it allows for fines running up to 20 million euro's when the rules are not respected. This may happen when there is no explicit informed consent for scientific research using patients health data, not giving patients full control over their own tissues or when there are insufficient safeguards to ensure that the data that are used of patients are correct and up to date.

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Privacy and data protection in Digital Health [Keynote]

Data about healthcare and biometric data are considered 'sensitive data' under the General Data Protection Regulation of the European Union, which will come into full effect in May 2018. In principle, processing those data is prohibited, though there are exceptions. It is far from sure that smart healthcare applications will be covered by those exceptions. This will have an impact on digital health start-ups and hamper innovation in practice. In addition, the application of the GDPR is determined by the scope of 'personal data', which may include anonymous, aggregated and statistical data - this may have a big impact on the possibility of doing scientific medical research on patient data and biosamples. Although the privacy and data protection framework has not always been adequately enforced, the GDPR will change this - inter alia, it allows for fines running up to 20 million euro's when the rules are not respected. This may happen when there is no explicit informed consent for scientific research using patients health data, not giving patients full control over their own tissues or when there are insufficient safeguards to ensure that the data that are used of patients are correct and up to date.

Duration: 16:14
Licence: CC - Attribution
Original Language: English
Published: 2/2/2018
Format: Conference

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Privacy and data protection in Digital Health [Keynote]

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